tag:blogger.com,1999:blog-8913410527801032443.post1351652313154238252..comments2023-05-10T04:06:34.174-07:00Comments on Living Bendy: New Rheumy, New hope?Carriehttp://www.blogger.com/profile/06496819852705481151noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8913410527801032443.post-12361671320242532062012-02-09T11:27:07.280-08:002012-02-09T11:27:07.280-08:00What area of the country do you live? there are a ...What area of the country do you live? there are a few drs who specialise in EDS, in london, manchester and sheffield.<br />visit www.hypermobility.org for info on drs.Carriehttps://www.blogger.com/profile/06496819852705481151noreply@blogger.comtag:blogger.com,1999:blog-8913410527801032443.post-28680983585709976412011-02-18T01:43:04.437-08:002011-02-18T01:43:04.437-08:00Hello there his site and blogs are so helpful!! I ...Hello there his site and blogs are so helpful!! I have been going to he doctors for years with pain and went through the ordeal like most with them not believing you and ignoring the symptoms! I just carried on pushing my self to work through the pain and taking any medication i could get at the time! In 2008 i had sciatica going down both legs on top pain through all my joints and muscles, i could barely walk, stand, sit or ly-down it was unbearable, i was getting know where with the doctors so i went private, where i got diagnosed in 2008! after ten years of going to the doctors and showing them my joint movement it never raised any alarm bells. I realise how little the doctors know about eds! i was told that there was one guy who specialised in this condition dr bird, but in the same breath was told he retired and now i see he had not at this time, disappointing, as 3 years on im no further on with help but my pain has worsened! I dont seem to have any one to support me with any knowledge on eds? I would be so grateful to be referred to some one is interested in the condition! I have had to ask for physio, pain clinic, mri scans and i even had to ask to see a rheumatologist as never seen one, nothing was suggest or offered other than take medication which brings on other problems, i have been saying since i was 17 about stomach problems and pains, i get lots of infections and swelling is this from eds?? Just been to doctors ten years on still having stomach problems server stabbing pains, my doctor suggested it maybe a pulled muscle!! But im used to that sort of pain! If anyone can give me some rheumatologists that specialise in eds. I just get a little over whelmed by the lack of support with eds! Thanks for your time and support, good luck on your journeys kimAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8913410527801032443.post-70704303931516543062010-12-27T08:48:00.564-08:002010-12-27T08:48:00.564-08:00I am so pleased that the new rheumy is efficien &a...I am so pleased that the new rheumy is efficien & empathetic. I too am in defense mode when seeing a new consultant. Latterly not having had much joy particularly with a neurologist! It makes a great deal of difference to be treated with resect. I sincerely hope your ongoing care is good. You deserve new hope.Acheloishttps://www.blogger.com/profile/13489197508242501952noreply@blogger.com