Living Bendy

A personal experience of daily life with Ehlers Danlos Syndrome and POTS

Saturday, 7 April 2012

Keeping Vocal - Speech and vocal problems in EDS and how to manage them

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Speech and vocal problems are very common in EDS. In fact it is one of the earliest signs that a child may have EDS that is now becoming mor...
6 comments:

New found finger freedom! The joys of voice recognition software

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Hello folks, this blog is coming to you via the amazing Dragon naturally speaking voice recognition software. I've been struggling with ...
2 comments:
Thursday, 9 February 2012

Moving on

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It’s been nearly a year since I last blogged. You are probably wondering where I’ve been and what I’ve been up to. The last year has been a...
5 comments:
Wednesday, 13 April 2011

The Drama of EDS - The TV Freakshow

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EDS is becoming the subject of TV dramas as the condition is becoming more well known. You would expect that this would be applauded by suff...
5 comments:

April Showers and Springtime Sun

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We are a quarter of the way through 2011 and for people with EDS a lot can happen in 3 months. Last time I posted things weren’t great and I...
Tuesday, 18 January 2011

How to have a good GP appointment

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For most people a visit to the gp is a quick 5-10min job to have a sore throat or upset stomach checked out. For people with Ehlers Danlos a...
Sunday, 9 January 2011

GI Joe!...the unrelentless gastric EDS soldier

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Gastroenterology is a word that many with EDS become fluent in rolling off their tongues. Secondary to joint instability, the digestive syst...
7 comments:
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About Me

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Carrie
I blog about 2 things I live with…Ehlers Danlos Syndrome and my total faith in Jesus. I’m a illustrator, musician and filmaker passionate about using Arts and Media to raise awareness of rare and debilitating conditions like EDS.
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