Living Bendy

A personal experience of daily life with Ehlers Danlos Syndrome and POTS

Showing posts with label POTS. Show all posts
Showing posts with label POTS. Show all posts
Wednesday, 13 April 2011

The Drama of EDS - The TV Freakshow

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EDS is becoming the subject of TV dramas as the condition is becoming more well known. You would expect that this would be applauded by suff...
5 comments:
Sunday, 26 December 2010

New Rheumy, New hope?

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I recently saw my new EDS rheumy(rheumatologist) For people with EDS, the rheumy is the top of the food chain when it comes to our long list...
3 comments:
Wednesday, 1 December 2010

Deck the halls and all that stuff!

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Hi everyone, First thank you all to everyone who has contacted me to let me know that my blog is helping others to understand EDS/HMS and al...
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Carrie
I blog about 2 things I live with…Ehlers Danlos Syndrome and my total faith in Jesus. I’m a illustrator, musician and filmaker passionate about using Arts and Media to raise awareness of rare and debilitating conditions like EDS.
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